Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Gulf War illness (GWI), as well as other fatigue-related illnesses are poorly understood. Individuals can experience severe, long-lasting fatigue, which cannot be properly explained through extensive diagnostic procedures. Our research partnership with the CDC, Miami VA, NIH, other universities and private institutions furthers the understanding in the medical community as to how these illnesses affect their patients which can be used to develop a better understanding for improved health care.
Your participation will be contributing to the knowledge and understanding of these illnesses. With your help, people with ME/CFS, GWI, and other fatiguing illnesses may be better treated in the future. We thank you in advance for your participation and continued support.
Our priority is the safety of our research participants and clinical research staff. The institute will proceed to monitor research operations and maintain close communications with research participants that are currently enrolled in active research studies. We will continue to recruit interested participants in studies in order to continue our efforts in advancing knowledge and care for people with complex neuro-inflammatory illnesses. Thank you for your continued support and research participation.
COVID-19: Understanding the Post Viral Phase
The study aims to survey a community-based epidemiologic population in sufficient numbers to estimate the risk of long-term sequelae post-COVID-19 acute infection, with special focus on ME/CFS symptoms. This longitudinal study will involve a large online survey component involving the study populations.
COVID UPP-- COVID 19: Understanding the Post Viral Phase (Part 2)
This study will conduct a phenotyping assessment to describe the persistent illness that can follow acute COVID19 infection, evaluating clinical presentation and biomarker expression in a subset of the cohort that is also enrolled in a longitudinal study of prevalence, trajectory, and illness severity. This study will involve an on-site clinical assessment to phenotype the ME/CFS-like illness and will draw from an unrecovered symptomatic group, versus a fully recovered comparison group of participants who are currently enrolled in the companion study.
Understanding Recruitment Barriers and Facilitators to Long COVID Research: A Qualitative Project to Enhance the COVID-UPP Study (COVID UPP Qual)
The project goal is to inform recruitment and data collection methods and the interpretation of the findings from the COVID UPP Study. Objectives: 1. Describe barriers and facilitators to, and motivations for, participating in COVID research studies for people with long COVID conditions to inform the design of the COVID UPP Study. 2. Describe perceptions of long COVID care and treatment and long COVID research and how it may impact participation into long COVID studies.
If you are interested in learning more about the Long COVID research happening at INIM, call 305-275-5450 or email INIMresearch@nova.edu
The Gulf War Illness Clinical Trials and Interventions Center (GWICTIC) is conducting several clinical trials and interventions aimed at understanding Gulf War Illness, also known as 'chronic multisymptom illness'. These clinical trials are funded by the Department of Defense (DoD) and will be conducted at NSU's Institute for Neuro-Immune Medicine, Boston University, Bronx VAMC, New Jersey War Related Illness and Injury Study Center (WRIISC), and the California U.S. Department of Veterans Affairs War Related Illness and Injury Study Center (WRIISC). For more information, please contact us at 954-262-2870 or email GWICTIC@nova.edu.
If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry form
For more information, please contact us at 305-575-7648 or email VHAMIAGWI@va.gov.